Thursday, July 31, 2008
During the feeding study there was a speech pathologist and an occupational therapist in the room with us and we fed Will all sorts of stuff. We were supposed to bring things that he eats well and then things that he has trouble eating. I brought pureed pears which he normally lets fall out of his mouth without swallowing, cheetos, which he normally really likes and tries to eat but still let it fall out of his mouth and cheerios which he does the same. There is really nothing that Will eats "well" except for drinking his bottle, he never lets any of the formula come out of his mouth.
And wouldn't you know....he ate like a champ!! Like I hadn't fed him in days, weeks, months and years!! The pears, ate them with out anything coming out of his mouth! I couldn't believe it, Josh and I sat there in shock as he opened his mouth for each bite. I kept saying "he normally doesn't do this well". The therapist said that this sort of thing happens all of the time, I am not sure that I believe her!
So they watched Will eat his food for about an hour and asked us questions and took notes. After that was all done we went down stairs to the x-ray department, where he would have the swallow study. During this study they mix barium with his food and take an x-ray of him swallowing. The barium makes the food glow in the x-ray. So Will did some more eating, which he did really well but was starting to get tired and full.
They said that Will is swallowing some food even though he is letting some come out of his mouth. He also doesn't pocket food in his mouth or throat, though they thought that he holds food in the back of his throat longer than he should. And that his suck is not very efficient, he has to suck a few times before he gets anything out of his bottle.
The therapist thought that he would be a good candidate for the e-stim therapy that we had discussed with his GI doctor in June. We are going to have to wait until one of the therapists has an opening in their schedules and we also have to line things out with our insurance.
I will have to take him to the therapy sessions 2-3 times a week for 90 minute sessions each. So this is also a major time commentment for me but I am totally on board with it because I really think that this is going to help.
So it was a really successful visit today, even though he ate like it was his last meal!!
We here at Lilo and The Stitch hope that you have a great day!!
ps. I realize that I look really scary in this picture, but it was the only recent picture that I have of Andrea. This photo was taken at Marcea's graduation party. In the photo are Me (the scary looking one), Teresa (Josh's little sister), and Andrea (the birthday girl).
Tuesday, July 29, 2008
Today, I had to pull Cow out of the trash can. Gross!
I was looking for Mr. Cow because Will was really fussy and Mr. Cow always does the trick, but I couldn't find him. I looked around the living room, upstairs, in the van and Mr. Cow was nowhere to be found. Then I decided to take look in the kitchen trash can and there he was. I was holding Will when I looked into the trash can and I lifted the lid and Will started giggling. What a stinker!
Will really liked the fruit punch. He didn't let any come out of his mouth. He had lots of practice with an open cup!
From Left to Right: Me, Caroline, Josh, William, Phyllis (my grandma), Marcea, Mikkah, Chris (my dad), Leslie, Lauren (my sister), Vicki (my step-mom), Christopher (my brother), and Aaron (Leslie's boyfriend).
Friday, July 25, 2008
I turned on the radio today while in the car, hoping to find a good tune. What do I hear?? Christmas music!!! Are you kidding me!!! I am sweating, there is no snow in sight and it is the middle of JULY!!! So why am I hearing Christmas music?? After much pondering, I realized that today is July 25th, six months before Christmas. Good grief! Seriously??!! And they didn't just play one Christmas favorite, they have been playing it ALL DAY!!!
On to other things....
When do dogs realize that it is not okay to pee on my kitchen floor?? Hmmm, though Buster may be cute I am not sure why it is taking him so long to get this whole potty training thing. He has grown out of the crate that we had for him, so we had to get him a bigger one but he still hates it. He has not reached the point of "this is my home therefore I shall not pee in it!!" yet. I am patiently waiting for the doggie light bulb to go off and him to take a liking to peeing in the grass. But it can't happen soon enough.
William realized today that it is really cool to blow raspberries. Funny!
First thing...My Husband is coming home today!!!! Praise the Lord! He will be home just in time to put the kids to bed. Caroline has already said several times today, "Daddy will be home today!"
Second thing...Today I was running erronds, it wasn't unbearable hot yet so I had the windows rolled down and the music turned up. I was singing and sorta dancing in my seat (don't judge, you know you do it too!!) I turned around to check out what Will was doing and he was dancing in his car seat and trying to sing along too (babbling and cooing). The boy was grooving to "Pink Houses" by John Mellencamp, that's my Boy!
Here is another random thing you may not know, I have actually met John Mellencamp. When we lived in Bloomington, IN (that is where John and his Almay model wife, Elaine live with their two boys, Hud and Spek) I was at work and he came into the office that I was working at. I said Hello, he said Hello, he bought something and I touched his credit card!!! I almost peed my pants and he probably thought I was a complete Dork because my face was bright red and I was fighting back that "Holy Crap, is this really happening to me" smile.
Anywho, Will has been trying to shake his goove thang for about a week or so. He bends his knees and bounces, arms out for balance and his head is down (he is looking at his feet). It is pretty cute to watch, I am trying to get it on video but I never really get the grooving part. I'll try, I promise! But in the car he was kicking his feet and wiggling around in his seat. Too cute!
Third thing....Josh is coming home today! Oh, sorry I already told you that!
Fourth thing...I had to go to Aldi's today. I didn't have cash (which I normally carry) so I was going to use my debit card, until I realized that I couldn't remember my pin number. I never use the darn thing and if I do I just have them run it as a credit card. Well, Aldi's doesn't do credit cards so I had to abandon cart and go to the bank and get cash. Grrrr...and remember that Will was with me and he has now learned that he can stand up in the cart and the cart that I had to pay my quarter for didn't have the seat belt thing, so I had to hold Will while I put my groceries on the belt and paid for them. Trying to hold him is like trying to hold a greased pig. It was not fun.
Fifth thing...sorry, that is all I got.
Wednesday, July 23, 2008
Oh, tell me what you think! Do you like it so far? What don't you like? Thanks!
She also has some cute picture of the boys and Caroline and Ava at the zoo!
Tuesday, July 22, 2008
Monday, July 21, 2008
When we went to the RTS Midwest Reunion we met Max and his family, remember the picture of the two boys? They are so stinking cute!
At the reunion we decided that our families would go to a Cardinals/Brewers game when the Brewers where in St. Louis. Well, they got into town yesterday afternoon and we all met at the zoo this morning. Alex just so happened to be coming to StL for a doctor appointment today so him and his family met us at the zoo too! We met Alex and his Mom and Dad at Cardinal Glennon a few months back and Jessica and I have been keeping in touch through e-mail ever since.
It is so cool for us RTS parents to get together because they are all like family, our RTS family. Kelly (Max's Mom), Jessica (Alex's Mom) and I are all bloggers, so we each read about each other's kids on a daily bases. So it was very cool to get together and talk and compare notes, etc. Here are all of us Blogging Momma's and our Boys!
Did you notice that Will is holding Alex's hand?? How cute is that!!
Here is a picture of all of the kids today. There are Alex's two brothers, Noah and Joel, Caroline and Will and then Max and his sister Ava.
Caroline and Ava had a great time today. They are both the same age (only two weeks apart in age). Lets just say that they talked non-stop while we were there! I am not sure who talks more, Caroline or Ava! It is funny how they are exactly the same in their manorisms and the things they say, they were funny!
We are going to the ball game tonight. Christina is coming along too to help me out with the kids, since Josh is out of town, STILL! I will be posting pictures from the game sometime tomorrow! Go Cardinals!
Saturday, July 19, 2008
We are having a "carnival" for Will's 2nd birthday, I have been working on it for months, seriously, I heard that gasp! I know, I need a hobby. Anyway, back to the point, Myssie! I thought that I might make homemade soft pretzels. I found a recipe here, but I would like to make the dough ahead of time and freeze it. That way I only have to make the petzels on the morning of the party. Can I do that? Or will it mess up the dry yeast stuff? I have no clue. Please leave me a comment and let me know the answer. Click on "comments" at the bottom of this post and type in your comment in the box and post it. Please! Thank you!
Friday, July 18, 2008
Many people have said to me, "I don't know how you do it when Josh is gone" and quite frankly I am not sure how I do it. Will requires alot of care, the feedings alone are enough to drive me batty. Even though he will be two in a month he is like a 12 month old in his development. So he needs constant supervision, constant. He is in to everything, climbs on everything, and puts everything in his mouth. Caroline, well, she talks more than any child should, I really wonder if her jaw is sore by the end of the day. I am not kidding, non-stop talk.
I guess I just go to auto-pilot. I just get through the day the best I can. I loose my cool faster, we eat crap for dinner because I don't have the time or energy to cook, and my house looks like WW 3 took place in it. Let's just say that it is not my finest hour as a Mommy. I hate every minute that Josh is gone, it sucks, but I just do what I gotta do.
I am exhausted and it is only Friday, I still have 7 days!!
Thursday, July 17, 2008
So this is what Will has been up to lately....WALKING!!
He really started walking more about two or three weeks ago but I didn't post about it because I didn't want to jinx it. I wanted to wait and make sure that it was for real and that I wasn't dreaming or something. But I feel comfortable saying that William is a walking man! He is so cute! Disregard my mess of a living room in the video!! That darn housekeeper just quit showing up!!! LOL!
He started to stick out his tongue a little bit but never really got the pudding off of his lip by using his tongue. But it sure tasted good!
Wednesday, July 16, 2008
Saturday, July 12, 2008
The rest of our trip home was pretty uneventful, thank goodness. The ride home only took us 12 hours, so we were thankful for that. We were all ready and glad to be home!
Friday, July 11, 2008
Caroline had fun jumping into the pool. It was only 3 foot deep so she never went under (right up her alley) and it was fun to see all of the faces that she made while jumping.
Will had fun in the water too. He is a little water bug.
After swimming we went out. We had promised Caroline that she could pick out a suvinior so we went to one of the stores, you know the kind, every thing under the sun that a tourist would want. And she picked out....A hermit crab! Good gravy! She named him, Hermie.
After we (she) decided on the crab, we went for some dinner. We were told of a place that had the best seafood in town and they weren't joking! The food was great, the place was called the Dewey Destin. It did not disappoint. It looked like a complete dive but once I ate a shrimp I really didn't care that I was sitting at a picnic table! If you go to Destin, you have got to check this place out!
Thursday, July 10, 2008
Wednesday, July 9, 2008
Tuesday, July 8, 2008
I got to the ER at 12:25pm, checked in and was taken back to a room. I still had the button, so I just thought that they would put in a new one and we would be off. Wrong. We waited for over an hour before the doctor even came in to see Will. I was starting to get mad because I knew the longer that we waited to put it back in the harder it was going to be because the body's natural reaction is to start closing the whole.
When the doctor came in he asked what type of feeding tube it was, I told him a "mic-key button", to which he replied that he had never heard of it before, what?? Seriously?? Then he said that he didn't think that the hospital would have a replacment, are you joking??? Then we decided that the old button was okay to put back in because the balloon was still intact and working (holding water). So he tried putting it back in....it wouldn't go it. Will just about jumped off of the table and his eyes just about came out of the sockets and screamed in pain. I told the doctor to stop and he would have to come up with a better solution, because the button was going back in as is. He went and got a helper, they put some ky jelly on it and pushed in it. Will was screaming, I was screaming and we were not happy.
They gave Will some tylenol for the pain. They didn't offer me anything.
They then wanted to make sure that the button was in the right place so they wanted to put some contrast in his stomach and take an x-ray. Okay, I am good with that. Problem was they didn't have a way to get the contrast into his stomach through the tube because I left the extention tubing at the hotel. I didn't think there was any reason to grab it in my panic to get to the ER. And because none of them had ever seen a mic-key button before they didn't know about extention tubing. So I had to take Will and run back to the hotel to get the tubing and then go back to the ER and have the x-ray done.
We finally left the hospital at 3:45pm. All is fine, button is back in. But we did not relax today, maybe tomorrow.
Monday, July 7, 2008
Lilo and The Stitch is being brought to you today from Destin, Florida. The kids and I are here with Josh who had to come down here for work all week. It's rough, but some body has to do it! We brought along Christina for the ride, she is our awesome cousin/babysitter. I can't believe that she actually agreed to come along and help me out with the kids while Josh is working, but hey, I'll take it! She is really great with the kids and Caroline is happy to have someone to play with.
So on Sunday morning, bright and early (5am) we left home. The 13 hour car ride was a dream, not! The kids did really well until the last hour. During the last hour Will cried, non stop and threw up all over himself and his carseat. It was great.
But we finally made it to sunny Destin at 6pm, we ate some dinner and went to the hotel pool. We swam for about an hour or so then got baths and went to bed, no I am sorry, crashed.
This morning we got up and had some breakfast then went to the beach. Caroline loved it, Will not so much. He didn't like it very much and actually fell alseep while Josh was holding him. This was the first time Christina has seen the ocean (or gulf, same difference), so that was exciting.
Caroline and Christina jumping the waves.
Will and I getting our feet wet.
Caroline making a sand castle.
Saturday, July 5, 2008
After the parade we went to a pool party. The kids went swimming and had a good time. Then we went to Josh's mom and dad's house for dinner to celebrate Josh's dad's birthday. Then we headed home and started packing for another adventure.
Wednesday, July 2, 2008
Tuesday, July 1, 2008
Please pray for Grandma Montroy.
7/3/08 Update: Please continue to pray. Grandma starts chemotherapy treatments today. All prayers are greatly appreciated.
Me: So what did you do a Grammy and Papa's?
Caroline: We went to the Amish!
Me: The Amish? What for?
Caroline: We went to just look at the cows.
Me: Look at cows?
Caroline: The Amish don't use their phones or turn on their lights, but they DO answer their doors! (pointing her index finger at me)
Me: They DO! That is awesome Girl!
She is so funny! They DO answer their doors! The child is enamored with the "Amish Way" thanks to the PBS Kids show Arthur. Isn't it funny how she thinks that they have phones and lights but they just don't use them? I think that I may have to tell her that they don't even have them, she may flip a lid!
So the story is that Papa (Jimmy) went to look at some cows that the Amish folks have for sale. He is going to buy a few for his pasture. Caroline wants us to take her back down to Sparta today so that she can go with Papa to pick up the cows! Sparta is about a hour from us, if only she knew about gas prices...