Shoes?

Josh and I are not sure what to do...Our physical therapist told us that Will will most likely need bracing for his feet. His feet tend to roll inward, so he is walking on the inside of his ankles. She also told us that we need to put him in hard sole shoes so that he has more support because he likes to use his big toe alot for balancing (his big toes is VERY flexible). So she wanted us to talk to orthopedics when we went to Myelo Clinic last time. We talked with the doctor and he said that he would never brace a child as young as Will that we should wait until after he is walking and that soft soled shoes are the best way to go. So Josh and I are really confused as to what we should do. It makes sense to us to put him in hard sole shoes because that big toe does crazy things! We also think that it makes sense to give him extra support around his ankles to help keep them from rolling inward. Sigh...what to do...

Today Will had PT and she had a pair of the braces that another kid grew out of and she brought them in to just experiment. I thought that there was a definate change in his foot posture (he tends to stand with his feet far apart and toes pointing ourtward). He was standing with his feet closer together and toes pointing forward. So we kept the braces so that I could show them to Josh and we are going to the pedi. next week so I am going to talk to him about them.
I am also leaning toward the PT's opinion a bit more too because she has treated another child with RTS and knows what to expect and what to look for as far as what RTSweeties tend to do. The ortho and pedi have never treated another RTSweetie and their knowledge is limited.
Josh and I are going to go over all the options and make a decision, sooner or later...

Who knew buying shoes could be so difficult!

It's official...

he has caught a bug. He started with a runny nose yesterday and fever. He didn't feel well at all yesterday but I think that he is doing better today. I made the mistake of mentioning that we hadn't been to see the doctor for quit some time! Should have kept my mouth shut!

We have a busy day today. We have a birthday party at the zoo at noon. Then down to Perryville, MO for a party for Christopher at 4:30. Caroline is super excited about both events...I hope that brother can last the day.

What's going on?

I am not sure what is going on with Will. The night before last he woke up during the night (nothing unusual about that) and I noticed that he had vomitted in his bed. He cried for a bit then went back to sleep after we cleaned him and his bed up. Poor Mr. Cow got most of the mess but was as good as new after a cycle in the washer. Yesterday he acted fine, like normal so I just thought that it was a fluke that he got sick. Just had something that upset his belly. Then last night...he woke up in vomit again! The only difference between last night and the night before is that he would not stop crying. He cried most of the night and there was absolutely nothing Josh or I could do to console him. We tried everything...prevacid, thinking that he was having some reflux. motrin, thinking that he was teething. feeding him, thinking he was hungry. rocking him, thinking please stop crying! Anyway, you get the picture...nothing worked! Finally, we got him to go to sleep but even this morning he is not acting like himself.

I am beginning to think that he is constipated. Which is leading me to believe that the Milk of Mag. is not working. Cindy-what do you do for Natalie's constipation? Speaking of...I hear him grunting right now. Nothing is happening with the grunting, he must have just realized that he can make a new noise, who knows...

But the constipation doesn't explain the vomitting. I am not sure what that is all about. Maybe a bug that only causes you to vomit while sleeping, I don't know. Mr. Cow survived the night with no yucks, he looked relieved this morning!

We are staying home today to regroup from our long night...

(In case you thought that there was a huge cow in my washer and in Will's bed...Mr. Cow is the stuffed animal that Will sleeps with every night. He smiled and giggled yesterday when I gave him Mr. Cow after he had a bath, totally cute!)

Is it okay to pray for poop?

I did it!

Ok, I did it! I changed Will's g-button! I am not going to lie to ya, it was GROSS!! But I did it. I had to put a surenge into the side port on the button and pull out the water keeping a balloon inflated in his stomach and then the button just pulled right out. The hole where the button is is gross and food from his stomach came out. But I did it! The hole looked like an ear piercing hole, for lack of better discriptives. The changing of the button wasn't that big of a deal and they only made me do it once (and Josh just watched!) So I hope that we don't have to change it out any too soon!

They also use silver nitrate on his granulated tissue around the button site. It is now black and GROSS! They said if it is still there on Monday that we have to go back for some more. I guess that it stung when they put it on because he did not like it at all. They gave him some tylenol and he seems to be doing better now.

We also weighed him today and surprisingly he only weighed 15 pounds 6 ounces. Josh and I were a bit disappointed because we thought he was gaining alot. We both got the impression from the nurse that we need to be feeding him more. Sigh...I thought we were doing good. We see Dr. Rahman in 2 weeks for a well baby visit and we will see what he has to say about it.

I hope that everyone enjoys their Monday and tries to stay cool, good luck!

As I am typing this...

Caroline is laying on the floor watching cartoons and Will crawls over to her and gives her a "kiss" (I really think that he is trying to eat her hair, but she is calling it a kiss!) They are giggling and laughing, just having a great time. Caroline is hugging on Will and he is smiling and giggling. It has got to be one of the cutest things that I have ever seen. Now they have decided to dump a BIG basket of toys onto the floor, yikes!

We are staying home today to get some housework done. I need a housekeeper! I have laundry coming out of my ears!! Wish me luck...

Water Bugs

We went to Splash City (again) today and today Will was crawling around in the water and having a great time. There were a few really small bubblers in the baby pool today and Will had so much fun with them. He even put his face in the bubbler! It was really funny to watch him look for the water then to have it come up in his face, he would just giggle and laugh. Thought that I would share it with you all, I think that I may have a water bug on my hands!!

Water Bugs

We went to Splash City (again) today and today Will was crawling around in the water and having a great time. There were a few really small bubblers in the baby pool today and Will had so much fun with them. He even put his face in the bubbler! It was really funny to watch him look for the water then to have it come up in his face, he would just giggle and laugh. Thought that I would share it with you all, I think that I may have a water bug on my hands!!