I have given Will a new name...Hubba Bubba!! That's because he gained 3 pounds in a month!! He is doing so well with his eating by mouth that we are now only tube feeding him one time a day (in the morning) and he is eating and drinking the rest of his calorie intake by himself.
He is a bit on the chunky side right now...
Gaining 3 pounds in a month is very exciting but not ideal, he needs to slow down. I never in a million years would have thought I would be saying that a year ago! We are hoping that within a few months we can cut out all tube feedings, won't that be exciting!! I think that we might have a party, not even kidding!! So we are monitoring his calorie intake and we will weigh him again in a month, if he has gained then we will decrease his tube feedings. If he loses a little weight it will be okay (since gaining 3 pounds in a month last month) and if he stays the same that is fine too.
I can not even tell you how excited Josh and I are about Will's new found eating habits. What a difference a year makes!!