Friday, April 3, 2009

Home Sweet Home

Will was released from the hospital yesterday evening. We weren't sure if he was going to be able to go home but the doctor seemed to think it was okay. The nurse told us that she thought it would be okay for him to have a tube feeding of his pediasure before we left the hospital. He had been drinking his pediasure by mouth all day and was doing fine with it so she thought that tube feeding him wouldn't be a problem. Wrong. He vomited Every. Last. Bit. Of. It. The doctor came back in and said that the medication for the CVS (cyclic vomiting syndrome) only works to prevent future cycles but does nothing for the present vomiting, he would have to cycle out of it himself. So she went ahead and sent us home because he was managing his oral feeds well.

We are home, happy to be home and all slept well last night.

We are going to give Will days of just pedilyte tube feeds and pediasure orally to let his belly take a rest. Hopefully after that time he will have cycled out and we can add in the pediasure tube feeds back in.

As hard as it was to hear another syndrome diagnoses, it completely makes since. If he goes vomit free for three or four months after being on his new medication, then we know that it is CVS.

Thank you everyone for your thoughts and prayers. It was comforting to know that so many people were praying for him.

7 comments:

Marissa said...

So glad you guys made it home. I'll be praying he starts tolerating his tube feeds.

Have a great weekend!

Alicia

Terri H-E said...

Welcome home. Wishing you a peaceful weekend.

Kristi said...

Will, I hope you feel better soon little guy..

Jacqui said...

Wow what a roller coaster you have been on during the last few days. I haven't been able to check my blogs that I follow so only now picked up on your story. I am glad Will in back home, but I am sorry to hear about that extra syndrome diagnosis - poor little guy. That's nasty. I hope he cycles himself out of this quickly. But on the other hand, he it sounds like he is getting verbal which is so exciting. I will be keeping you all in my thoughts and prayers. HUGS

Lora said...

I'm so so glad you are back home. And that now you have something that will help him in the future. *here's to less puke!*

Kelly said...

So glad to hear Will is home. Hope he keeps things down!! Kelly F

Tarah said...

Glad to hear you are home and all is well. Hopefully this medication is what Will needs.