Home Sweet Home

Will was released from the hospital yesterday evening. We weren't sure if he was going to be able to go home but the doctor seemed to think it was okay. The nurse told us that she thought it would be okay for him to have a tube feeding of his pediasure before we left the hospital. He had been drinking his pediasure by mouth all day and was doing fine with it so she thought that tube feeding him wouldn't be a problem. Wrong. He vomited Every. Last. Bit. Of. It. The doctor came back in and said that the medication for the CVS (cyclic vomiting syndrome) only works to prevent future cycles but does nothing for the present vomiting, he would have to cycle out of it himself. So she went ahead and sent us home because he was managing his oral feeds well.

We are home, happy to be home and all slept well last night.

We are going to give Will days of just pedilyte tube feeds and pediasure orally to let his belly take a rest. Hopefully after that time he will have cycled out and we can add in the pediasure tube feeds back in.

As hard as it was to hear another syndrome diagnoses, it completely makes since. If he goes vomit free for three or four months after being on his new medication, then we know that it is CVS.

Thank you everyone for your thoughts and prayers. It was comforting to know that so many people were praying for him.