Josh called at 8:30am to tell me what Dr. Brady said...
- He looked much better this morning.
- She believes that he has Cyclic Vomiting Syndrome which would explain a lot of Will's vomiting issues. Basically, Cyclic vomiting syndrome (CVS) is a condition characterized by recurrent, stereotypical bouts of intense vomiting interspersed with periods of completely normal health. CVS usually occurs in children 5 years old and older. Dr. Brady has only diagnosed two other children Will's age with it. She started him on medication to help with it. He will be on the medication for 6 months and then they will start to decrease his dosage until he no longer needs it. CVS is something that children grow out of, he will not need the medicine forever.
- Caroline didn't go to school today. She woke up at 6:30am and threw up. I don't know if it is a nervous stomach, being very hungry or a bad turkey sandwich from yesterday. She is not running a fever and seems perfectly fine right now. She is missing her Easter party at school today and is not very happy about it. I am going to stop by the school and pick up her goodie bag for her, she was happy about that. All I can say is: Enough with the vomit ALREADY!!!!
- Dr. Brady seemed to think that Will would be able to come home some time today. They have already given him his sippy cup with his pediasure. All day yesterday he would say "ma" which is his "milk". He was asking for his milk, broke my heart! Especially since he seems to understand that if he says the word then he most definitely gets what he is asking for. He just kept asking me for his "ma" and I had to tell him no. I even caught him digging through his backpack looking for his cup. :-/ Poor guy. I am sure that he is a happy camper now!!
5 comments:
Myssie our ST the one we love so much (Cheri) her son had or has cyclic vomiting syndrome, if you go to her blog http://cheriandlaura.blogspot.com/
down a little on the right is her sons story, you have to click on the link.
Cheri is such a good speech therapist, and has dealt with this with her own son, maybe she could help you?
Im so glad Will looks better today!
So glad Will is doing better. Getting a diagnosis is such a mixed bag, isn't it? I'm glad you may finally be getting to the bottom of it.
Here's to the end of the vomit!!
Alicia
Awe. Hang in there. The spewing will be under control at some point. Believe it.
My heart, thoughts, prayers and hugs are with you. I totally know the feeling of going to a doctors appointment and then hearing "He needs to be admitted." I almost fear going to the doctor now because it has happened to often.
I am glad they were able to figure out what was causing the problem. Another diagnosis isn't fun, but I'm sure it's a relief to know what the cause was.
Take care and get some rest!
I hope things continue to get better and better.
Kelly W.
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